Military Spouse
  • Employment
    • Military Friendly Employers
    • Virtual Job Fair
  • Education
  • Entrepreneurship
    • Open A Franchise
  • Life
    • Deployment
    • Homecoming
    • Moving
  • Relationships
  • At Home
  • Magazine
    • Current Issue
    • All Magazines
No Result
View All Result
  • Employment
    • Military Friendly Employers
    • Virtual Job Fair
  • Education
  • Entrepreneurship
    • Open A Franchise
  • Life
    • Deployment
    • Homecoming
    • Moving
  • Relationships
  • At Home
  • Magazine
    • Current Issue
    • All Magazines
No Result
View All Result
Military Spouse
No Result
View All Result

Surviving: A Military Family and Spinal Muscular Atrophy

Military Spouse Team by Military Spouse Team
in Family
0
0
VIEWS
Share on FacebookShare on Twitter

I told my husband and my mom. They told me to wait until a doctor said it before I freaked out too much. I think in their gut they knew I was right but didn’t want to believe it at the time. Little did I know how soon I would get that doctor confirmation we all desired but dreaded at the same time.

That night he didn’t nurse much before going to bed. I laid him down around 9:30pm and as expected he woke up around 1:30am, March 1st. He wasn’t interested in nursing and I couldn’t calm his faint distress cries. He worked so hard to breath as I watched his stomach go up and down, gasping for every breath. By 3am I took him to the emergency room. We got right in and were immediately surrounded by five or so nurses. He was given oxygen and breathing treatments. They struggled to find a vein that was large enough to insert an IV line in. After sticking him five times they decided to drill into the bone marrow. Once fluid and medicine were administered he was given an X-ray. Pneumonia.

How could pneumonia manifest from three days after last being seen by the doctors? Why didn’t they tell me this everlasting congestion should be treated immediately? These answers wouldn’t change fate, but I needed to blame someone.

20

The ER doctor said that we would be better off going to Cape Fear, the local hospital, that has better pediatric care so we prepared to go in the ambulance. While being transported, I started to think about the seriousness of the situation. Once we arrived at Cape Fear I rushed to keep up with the paramedics as they hurried the stretcher down each hallway until we reached our destination. Once in the room breathing treatments, oxygen, fluids and medicine worked to relieve the distress my baby was in. He was exhausted as the night turned into morning, but as everything fell into place, he was finally able to rest.

Page 4 of 7
Prev1...345...7Next
Tags: familymilitary lifemilitary spousespinal muscular atrophy
Previous Post

YOU Are Enough

Next Post

Reintegration Struggles

Next Post

Reintegration Struggles

Please login to join discussion

Latest

Veteran-owned coffee companies for military families
Life

15 Veteran-Owned Coffee Companies Military Families Should Try

military spouses voting
Sponsored

3 Ways Military Spouses Can Be Ready to Vote

veteran healing
Health

Stop Waiting to Feel Better: A Veteran’s Perspective on Healing and Moving Forward

military marriage day
Life

Military Marriage Day 2026: This August, It’s Time to GROW

Woman architect at a sunlit desk by a window, drawing on architectural blueprints with a pen; mug reads 'MILITARY SPOUSE'.
Life

What Engineering Taught Me About Building a Stronger Military Spouse Life

Military spouse entrepreneur working on her business from home
Entrepreneurship

Be the Bracelet Queens: Stop Building Someone Else’s Business

In Case You Missed It

The Messy Middle: Why Military Spouses Shouldn’t Quit Before They Begin

The Best Military Spouse Scholarships Available to You Now

Command Spouse Confessions: The Loneliest Rooms Aren’t the Quietest Ones

If You Want a Village, Be a Villager: Building Community as a Military Spouse

How One Military Spouse Kept Her Paid Parental Leave Despite PCS Orders

Is Edelweiss Lodge and Resort Worth It? A Military Family’s Review

Terms of Use
Our Team
Advertise
Newsletter
Submit an Article
Contact Us
Privacy Policy
Compliance

Fall 2025

MSM_Fall25_Cover

Copyright © 2026 Military Spouse

Employment

Family

Lifestyle

Sitemap

No Result
View All Result
  • 2016 Kensington Book Club
    • Author Guest Posts
    • Book Club Picks
    • Deals of the Month
    • Exclusive Excerpts
    • Giveaways
    • Recipes
  • 2017 Military Spouse Friendly Employers®
  • Account
  • Advertise
  • Affiliate Disclosure
  • Air Force
  • Army
  • Base SOY Survey
  • Base to Beaches
  • Brands
  • Career
  • Career Resources
  • Coast Guard
  • Compliance
  • Contact Us
  • Contests
    • Contest Rules
  • Deployment
  • Editorial Calendar – Our Themes
  • Education Resources
  • Giveaway Sign-up
  • Hangouts
  • Health
  • Home
  • Home 2
  • Home 3
  • Home 4
  • Home 5
  • Homeschooling
  • I Pledge to Embrace Video Page
  • Login
  • Logout
  • Magazine
    • Current Issue
    • Fall Issue
    • Fall Issue
    • January / February
    • July / August
    • March / April
    • May / June
    • November / December
    • September / October
    • Special Issue
    • Special Issue 2024
    • Spring
    • Spring Issue
    • Spring Issue
    • Winter
    • Winter Issue
    • Winter Issue
  • Malmstrom AFB SOY 2016 | Alexandra Fuller
  • Marine Corps
  • Members
  • Military Kids
  • Military Spouse [Live]
  • Military Spouse 2019 Media Partnership Guide
  • Military Spouse Education eNewsletter
  • Military Spouse Friendly Employers®
  • Military Spouse Media Partnership Guide
  • Military Spouse Partners
  • Military Spouse Quality of Life Survey
  • Military Spouse Student Leadership Award and Military Spouse Champions in Higher Education Award
  • Military Spouse Sweepstakes Official Rules (“Official Rules”)
  • Military Spouse Team
  • MILITARY SPOUSE: EDUCATION GUIDE
  • MILITARY SPOUSE: EMPLOYMENT GUIDE
  • MILITARY SPOUSE: PCS GUIDE
  • Military Spouse: Submit a calendar event
  • Money & More
  • MS_2.0v1
  • MSOY Homepage
  • MSOY12
  • MSOY16 Live ☆
  • National Guard
  • Navy
  • Navy Mutual
  • New Spouse Email Series
  • Our Team
  • Password Reset
  • PCS
  • Privacy Policies
  • QAs
    • Submit a Question
  • Register
  • Share
    • Glossary
      • A
      • B
      • C
      • D
      • E
      • F
      • G
      • H
      • I
      • J
      • K
      • L
      • M
      • N
      • O
      • P
      • Q
      • R
      • S
      • Submit a Glossary Term
      • T
      • U
      • V
      • W
      • X
      • Y
      • Z
  • Share Your Military Lifestyle!
  • Share Your Photos
  • Simplify Your Crazy, Wonderful Military Life
  • Site Map
  • Small Businesses
  • Spouse 101 Download
  • SPOUSE 101 GUIDE
  • Starbucks
  • Submit an Article
  • Terms of Use
  • testing of the Gutenberg
  • Thank You
  • The Military Spouse Resource Collection
  • User

© 2026 JNews - Premium WordPress news & magazine theme by Jegtheme.